Losing My Mom to Dementia

          I go to my mom’s twice a week to make sure she is eating lunch and learning that she doesn’t always have breakfast.  I didn’t know how we would introduce her to the idea of taking in a stranger (a companion who would help us watch her) but perhaps the idea may appeal to her if we introduce her as permanent company – so that mom won’t be so bored. 

          Corey is on vacation this week.  My niece leaves the house at six.  I am not certain of her husband’s hours – but do know that he’s not always there – which is understandable.  Ellen and Nate are a newlywed couple and shouldn’t even have to face this dementia challenge while starting out their life together.  But mom had invited them to stay.  And so even though mom has people living with her, she is still often left alone – and actually does get lonely.

          Four to six months ago she didn’t seem to have a problem with it.  Said she preferred it.  Liked being able to spread her wings without her children’s interference.  Now, for the most part, at least into my ears, she has admitted being bored.  To cure that boredom, she often goes shopping – which is fine if somebody drives her – but she is not always coherent enough to even remember where she’s going or how far it may be.

          This Tuesday I was late getting to her house – which wouldn’t have been that big of a deal if Corey had been home.  Actually – mom’s car was there when I arrived, and since she can’t drive it herself, she has allowed Nate to take it.  So he was there.  But he was in the basement.  She thought she was by herself. 

          I had called to tell her I’d be late.  And she waited for me.  I had some errands to run and took her with me.  She was really disoriented.  She hadn’t eaten.  We ate lunch at 12:30.  And we went for a drive.

          She had no idea where we were and kept on asking, “Now where are we going?”  I could have said Mars and she would have continued to ask me.

          She did enjoy the ride for the most part – but my car does seem to make dysfunctional noises – especially when going over a bump or pothole in the road.

          “What was that?” she asked me.

         

          “My car was in an accident a while back, and ever since it has made that noise.  Kind of sounds like I have a body in the trunk,” I joked.

          Great.  The one thing that she remembers.  Every time it made that noise she would ask, “Do you really have a body in the trunk?  Sounds like that body is still back there . . .”

          I had to stop off at the bank.  She had wandered off – Not only did she not know the area, I was afraid she wouldn’t remember how she got there that she was with me.

          After we returned to her house, she opened her mail.  There was an ad from Shopko (a variety store) and she decided that she must go to see what clothes were available. 

          Shopko is not far from her house – and she has walked there.  She has also come out of Shopko and left in a direction that does not lead her home. 

          I HATE leaving her alone.  And because of her comment about Shopko, I pointed to my own blouse and said, “I got this at Wal-Mart.  You have looked at the clothes at Shopko.  I’m pretty sure it will be the same selection as they had last week.  Why don’t I take you to the Wal-Mart near Jenna’s school, and we will just pick her up before I bring you home?”

          In the event that Nate returned while we were gone, I left a note that mom was with me.  She looked with interest at some things and disapproval at others.  She ended up with two blouses – which I don’t think she needs.  But at least I could watch her.

          Picked Jenna up and she was so excited to see her grandma.  And that made my mom feel good – for that moment.  I drove mom home.  She was exhausted and I figured she was too tired to leave the house again.

          On Thursday I arrived early.  She was at the house by herself.  She hadn’t eaten yet and so we had a fast food breakfast.  I should have taken her to a senior day care – she was dead set against the idea four to six months ago.  Perhaps she’d be more receptive to the idea now.

         There have been times when she's asked my two year old niece to go walking with her.  Oh, there's a scary combination.  We've learned to hide Anna's shoes so that we can say to mom that we can't find her shoes and she can't possibly take a walk without them.

          She said she wanted to go for a walk the other day..  I thought she meant around the neighborhood.  She decided that we would go to Sam’s Club.  The road is under construction.  I tried to discourage her from going – but she was determined.  I said the sidewalk was closed.  She said she was aware that the sidewalk was closed and that we could walk in the right lane of the road because “that is what it’s for”

          My eyes bulged as I tried to dissuade her, but struggled on nonetheless so that she wouldn’t be alone.  As we got closer to the store, she asked why we were going to Sam’s Club.  I told her that we were having a walk and that we should have just stayed in her neighborhood.

          “Well, let’s just look around while we are here.”

          As we approached the doors, she found amusement in watching two seniors pointing here and there and asking each other where they had parked.

          “They don’t even know where they parked,” she said.

          I found it ironic that she was seeing humor in a situation that has been part of her life even before the dementia.

          She said she didn’t need a cart.

         

          “That is good,” I said.  “Because whatever you get has to be carried home.”

          “Why?” she asked.  “We drove here.”

          “No.  We did not drive here.  We walked.  And I’m not even wearing decent shoes to walk in.”

          “We walked?”

          We’re not even in the front door yet. 

          At least she felt warn out again.  We both took naps.  I wasn’t happy about leaving her.  But I have to be home when Jenna returns.  And I need to start dinner for Roland. 

          We need to find a trustworthy companion.  Someone who is willing to watch out for her in exchange for room and board and meals.  And if she drives, she’ll have thirty or so restaurants to choose from.  Mom does enjoy going out for lunch.