Conversation With Mom

          My mom has dementia. Normally I visit her on Tuesdays and Thursdays.  This week I happened to drop by on Wednesday evening as well.  Since she had seen me three times in a row, yesterday morning I jokingly asked, “Are you tired of me showing up on your doorstep?”

          Quite relieved, she said, “Oh, I’m so glad you’re here.  I’ve been by myself all day!”  It was 10:00 a.m.

          “Well, [Corey]’s here,”

          “No.  [Corey] went to Las Vegas.  And I don’t know when he’ll be back.  But it sounds like he will be gone for a long time.”

          “Well, his car’s out front.”

          “Oh, is it?  Well he must have taken the train to Las Vegas” {There is no train from Salt Lake to Las Vegas – not that I know of}

                “I think he’s here.  He’s just still in bed.”

          “No. He got up early this morning.  He’s gone.  And I don’t know when he’s coming back.”

          It’s sad to see her so sad and distorted.  I knew that Corey was there – but I wasn’t going to wake him up to prove it.  And there was really no point in trying to convince her otherwise.  So I just let it go.

          She appeared to have wanderlust.  I asked her if she would like to go for a drive.  Something.  Get her out of the house.  I wish I would have thought to take her to the senior center.  I never think about it when I’m with her.

          She said she couldn’t drive {for the umpteenth time} said her driver’s license had been taken away and that she had to go to somewhere in Draper to get it back because they took it from her {as if they had stolen it} “. . . but say they will give it back if I come get it.  But how am I supposed to get it if I can’t drive?  Stupid people.”

          It’s all I can do to keep from laughing.  She then changes the subject to her first car – “you know, when we were living in San Francisco.” 
         I have never lived in San Francisco – but somehow she thinks all of us lived there.  She really was raised in San Francisco and sometimes will talk about where she lived as though I am familiar with all the landmarks and streets  and so doesn’t have to add further explanation – yet whenever she talks about her family she explains like I am not familiar with anyone but her

          “There were two of us that drove.  One lived north of Dudley Stone {an elementary school that went up to the eighth grade - when she wasn't driving} and I lived in the other direction.  And so she would take people who lived north and I would take ones that didn’t live north.  Remember?”

          I actually was familiar with some of the names she used just from her own resources given in years gone by – only I don’t know about the car pooling part - though I'm positive that she wasn't driving while attending Dudley Stone.  It’s true her step father had purchased a car for her – but I don’t think it was until after high school.

          “My mom and dad were divorced.  My dad was mean.  He used to smack my mom around.  I was scared of my dad {I think she was} but he ended up with this other woman.  I don’t know if they were married.  But she called me one day and told me that something was wrong and so I went over to her house and my dad was laying on the lawn and he was dead.  I don’t remember what happened.  I think I went to find the police and they took him away”  

          It’s true that my maternal grandfather and his second wife may have lived in California for a while – but had moved back to Utah sometime before my mom had turned thirteen – as she was thirteen years old when her mother put her on a train to Utah so that she could visit with her dad.  He didn’t die until several years later –

He didn’t die until after mom had married and given birth to three children.  We had even gone to the funeral.  I remember my brother, Patrick, looking into the casket and asking, “Why is that man in a box?”

 He died in a small town in Utah.  But mom believes (with every fiber of her being) that her father passed away on the lawn in California when she was a driving teenager

          “And my mom was 90 when she died – Oh, you are not going to believe this – my mom died at the cemetery while she was visiting . . . I don’t know who she was visiting – but she had family in the cemetery and she died while she was visiting them.  And they called me and told me I should have her cremated and they threw her ashes over the graves that she was visiting.”

          I had to throw my hands over my face so she wouldn’t see the laughter I was trying so hard to hide. First of all the only person my grandma would have known in said cemetery was my dad.  She, herself, did NOT have any relatives there.  Nor did she ever visit the cemetery to my knowledge.  My maternal grandmother died at Cottonwood Hospital.  And she was in her 90’s – I think that and cremation are the only parts my mom got correct.

          The cemetery doesn’t strongly advice cremation just because a person’s body was found lifeless over some headstones that they presume are family members.  Nor are ashes scattered over headstones.  There is a certain procedure that takes place in “scattering one’s ashes” and it had been grandma’s wish to be scattered in the ocean.  Mom had received some pictures that were taken on the east coast (Maine, I believe) to show her where the ashes had been scattered.  Whatever.  We take it upon faith that it was done, but we don’t really know

          She has lunch with a friend the second Thursday of every month.  They had met in San Francisco but had learned that they had both been born at the same hospital in Ogden.  She says they were in the hospital at the same time {I don’t know how much of that is accurate – especially since she says her friend’s birthday might be in July and mom’s is in June} and that her friend lives up the street but she’s not sure which house (probably because her house is NOT at the end of the street – though the two really are living in the same city and have lived in the same cities at the same time)

          Corey was home.  Mom was very surprised.  And happy. 

         

           While there are some things that my mom truly does remember and the details are truly real, there are just as many “myths” that have entered into her mind and have become just as real (if not, more than) the memories that really did happen.  
            Not a very reliable source, my mom.  It’s sad to watch her fall into another dimension.  And I sense her slipping further into this “marshmallow world” and there’s nothing we can do to bring her back to reality.

          I think it's highly probable that my mind may be visiting that same world that mom is now.  I hope for my family's sake that death may claim me before my mind does.  And I hope that they will be at peace with that. I think the mind-slipping thing is a lot harder to deal with.

Birds Gathering in Mom’s Backyard

          In 1963 Alfred Hitchcock’s “The Birds” was released in movie theatres.  My mom didn’t seem like a thrill seeker, but had gone to see “The Birds” and was quite freaked out about it.

          For years there was an apple tree in the backyard of the house where I grew up.  I recall several years when birds would fly overhead or gather into our yard as if it was the designated place for the birds to hold their daily or weekly conferences.  And mom would be freaked. 

          It seems quite hilarious really – by today’s standard’s I mean.  I remember mom checking out the video perhaps just a few years and decade after its release.  She sat Patrick and me down to show us this “very scary” movie so that we might understand her fears. 

          Well, it backfired.  The idea of the film was completely silly.  And everything looked fake.  (As an adult, I find the “making of the Birds” so much more interesting than the movie itself.)

          Patrick and I laughed – and even mom could see that it wasn’t really as scary as she had led herself to believe.  But we were watching a video in Patrick’s room with his two large windows and in the middle of the day with lots of sunlight streaming in.  Surely a dark movie theatre with these “bigger-than-life-sized-birds” (as they would appear larger on the big screen) was a lot more scary.  But Patrick and I believed that a large screen would only enhance all the flaws that we saw.

          Oh, I’m not knocking what may have been a horrifying chiller in 1963 – but by today’s standards – or even just the late ‘70’s, it seemed more like a comedy than a thriller.

          When I was at my mom’s house the other day, she pointed out the window and said to Jenna, “Look at all the birds!” 

She took pleasure in the fact that so many birds had gathered outside her window.  She wasn’t scared about or bothered at all.  And I thought back into a time when her reaction was always so much different.

          There has been a plus to the wicked health issues that have seemed to rob both of my parents of their yesteryear’s strength.  And that has been in seeing my parents behave in a different a manner unlike their old selves – but allowing themselves to express new emotions – or one’s that seem to have been buried away seem to rise to the surface.  I don’t often welcome the changes, but sometimes it brings me joy to see an unexpected behavior.  Such as welcoming the birds and not fearing the idea of what could happen (or at least did in someone’s imagination)

The Happy Drunkard and Exotic Dreams

          On Feb 14 I created this post.  My sister-in-law’s visits with my mom were positive and full of conversation.  My visits were not so uplifting.  And then mom became Mr. Hyde for each of us.  But now she’s seemed to take on this happy drunkard personality with a desire to travel – and in her mind she has.  In her mind she has done a number of things that she would have never even considered just five years ago – such as sky diving.

          I have actually never experienced a conversation of where she’s been and what she’s been up to – but apparently she has told my niece and nephew-in-law countless stories about having gone to Russia, Hong Kong, China, and South Africa – all within the last ten years (she has been out of the state, but not out of the country – unless it was with a tour group in the early 2000’s)

          Occasionally my niece and nephew-in-law will take her with them to my brother’s house for Sunday dinner.  Corey was with the rest of the family when mom related her “sky-diving” experience. 

          The conversation started out with reminiscing of sky diving events that had already taken place in real life with my oldest niece and nephew.  Their younger sister was unable to go because of age or lack of money.  But after having watched Ellen and Kimball experience the thrill of falling out of the plane, three other family members have been saving up money to experience the same thrill.

          Apparently my mom chimed in with a story of her own as she has also been skydiving (my mom has never sky dived in her life; she doesn’t even enjoy certain rides at the amusement park as her legs are dangling.  There is absolutely no way she would ever go sky diving!  She cringed at the very idea of Ellen and Kimball doing it.)

          And so the family allowed her to speak without correcting her. Some smiled as she did so.  And because the events were so real to her and she was able relate with details, Sunny said that even Corey seemed to question whether she had actually gone or not.  She must have fallen asleep during some war movie where they were jumping out of airplanes or was watching a documentary or something.

          My grandma has been to China.  Maybe Russia – I don’t know.  She really did go on several tours and saw many parts of the world before she died.  I don’t know if my mom got her own life mixed up with her mothers or if she has started to watch the travel channel or if she has exotic dreams or what. 

          There was a time when Jenna’s visits used to wear her out (I think Jenna’s enthusiasm and loudness has wiped out just about EVERY family member) but now she welcomes her and calls her cute and crazy.

          I don’t know if it’s her blood sugar or in the meds that she’s taking or if this dementia is somehow gratifying her because so many desires have apparently been fulfilled in her mind.  But it just makes me worry about her all the more – for I know there are times that she is alone – and it’s okay if it’s the television that takes her away – maybe not the best thing – but certainly better than having her walk out the door and not knowing where she is. 

          We’ve called the police on her a few times – one time they found her (that was just before we took her license away) and a few times kind strangers have brought her home from wherever she happened to be.  We need to set up the alarm system so that she’s unable to leave unless someone is with her.

Thanks to the police and all of those who have spent time assisting us with my mom.  Thank you to the firefighters who continue fighting the countless amounts of fires.  My mom used to keep herself updated on all the current events.  I wonder if she even knows about the fires – or if she’s completely missed the boat on them because she’s been having all these global vacations.

Dr. Jekyll & Mr. Hyde or Sybil

For those readers who may not recognize any of the names in the title, let me introduce you to a very brief history. 

The character of Dr. Jekyll was created before 1931.  He was a lab scientist who used himself as a guinea pig to test a potion which he had created.  I don’t recall what it is the potion was supposed to do, but as a result of his taking the potion, Dr. Jekyll would take on another – much darker – personality that was not the same as the one most people were familiar with.

His alter ego became known as Mr. Hyde.  So even though Dr. Jekyll and Mr. Hyde were theoretically the same person – sharing the same physical identity (or body I guess) the personalities were very different.  Dr. Jekyll and Mr. Hyde is science fiction.

Shirley Ardel Mason (1923 – 1998) was an actual person.  She’d been both physically and mentally abused by her mother.  Shirley had gone to psychiatrist Dr. Cornelia Wilbur in the 1950’s as there were some large pieces of her life that she seemed to miss out on due to black outs. 

It took eleven years for Dr. Wilbur to meet all of the personalities that would take over during Shirley’s blackouts.  It is said that there were sixteen of them.  They all had different names and different characteristics.  Many of the personalities knew of the others, but Shirley was not aware of any until Dr. Wilbur pointed it out to her.

In 1973 Flora Rheta Schreiber wrote a book based upon Shirley’s pshycological studies.  The book introduced the character Sybil Dorsett whose background and therapeutic studies was the same as Shirley’s.  The name had been changed to protect Shirley’s identity.  And in 1976 Sally Field portrayed her in the movie “Sybil”.

There are some who don’t believe in Multiple Personality Disorder (now known as Disassociative Identity Disorder) while others do.  I choose to believe.  I think there are different degrees in which personalities are displayed.  And there are variations of what may trigger these unusual out-of-character traits.

We all have moods and often seem to take on personalities unlike our normal selves due to drugs, alcohol, medicated side effects or lack of medication, aging, changes in our eating habits, health, witnessing or victims of some horrific action.  The list goes on and on.  In many cases the self personality may be controlled or sometimes it may seem quite doubtful that a person may ever return to normal again. 

I remember my mom as a woman who never wanted to take medication – even something as simple as asprin.  She was not one who would ever become drug dependant.  Or so was her wish.  She now has at least seven different prescribed medications that she takes for her diabetis, cholesterol, dementia and some other things.  And when she skips her medication or doesn’t watch what she eats, another personality seems to takes over.

I suppose my mood swings are very different during that time of the month, when my hormones are out of wack, when I go from being Dr. Jekyll to becoming Mrs. Hyde.  A lot of women go through that.  It isn’t refered to as a personality disorder though – and yet there seems to be at least two distinct personalities throughout the month.

I had a sinus infection during the month of December.  I also took meds with a nasty side effect that left me wanting to deal with the sinus infection instead.  I was loopy for much of the month.  I might as well have been in a coma.  Actually, that would have been preferable.

I have seen at least two distinctive personalities with my mom. There appears to be happy drunkard take over when she is not coherent.  And yet she sincerely believes in every detail she relates – like the time she drove downtown to see the forrest – there is no forest downtown – nor is there a dungeon.  But she truly believes in it – or did.  She may have forgotten it now.  I haven’t.

When I visit my mom I am usually with a woman who is a bit disoriented, who often is on a mission to spend her money, and doesn’t believe she has any problems whatsoever.  If she does have a problem, it is because someone else is “against her”. Sometimes she will acknowledge that she takes meds and is aging. But more often than not, I see a much different personality than does my sister-in-law.

When she is with my sister-in-law, my mom seems more put together.  They talk about mom’s desires for becoming independent.  My mom will share memories with my sister-in-law.  There are no memories when I am with her.  She doesn’t remember – or else she’ll be misinformed. Therefore we have painted two entirely different pictures of my mom’s condition. 

But then I suppose the same could be said about me – depending on who you are and how often we visit.  I have mood swings.  I have triggers.  I don’t have blackouts that have made me wonder when a transition may have occurred.  Mood swings are different from multiple personalities.  It’s just often it seems that these moods bring on a personality that is entirely their own.

Today I had the opportunity of taking my 1 ½ year old neice to visit my mom.  My mom loves my niece.  She got on the floor and played with her.  They teased each other.  I saw my mom from a much different perspective than I have seen her for some time actually.  Probably not since my brother’s kids were little.